WICC 2016 Day 2 Video Presentations



PLENARY three - engaging with communities & patients


1. Native Sisters (Native Patient Navigators, Survivorship Navigators) Linda Burhansstipanov, Native American Cancer Research Corporation (USA) 2. Engaging Well with Aboriginal women in WA - encouraging breast screening and more Leanne Pilkington, BreastScreen WA (Australia) 3. Elders & cancer John Waldon, 2 Tama Limited (New Zealand) 4. Palliative Care Patsy Yates, Queensland University of Technology (Australia)

concurrent session 3.1 - methods


1. Realising Indigenous Australians capacity to benefit from cancer care: Developing person-centred performance
measures in cancer control

David Banham, SAHMRI (Australia)

2. A Whole Genome Sequencing Approach to the identification of the genetic contributors to a Vulvar Cancer
Cluster in Indigenous Women

Jo Dickinson, Menzies Institute for Medical Research (Australia)

3. The use of linked data to better understand health inequities: The story of lung cancer and Indigenous people
in NSW

Kalinda Griffiths, University of Sydney (Australia)

4. Collaboration for Commercial Smoke-free Environments: A Social Network Analysis of a Navajo Coalition

5. A new measure of Aboriginal Community Engagement (ACE) and its relationship with health service use in
New South Wales, Australia

Rajah Supramaniam, Cancer Council New South Wales (Australia)

6. Theoretical Reflections: Can realist evaluation and the PEN-3 model elucidate Aboriginal Australians cancer

Paul Yerrell, NHMRC Cancer Data and Aboriginal Disparities (CanDAD) Project (Australia)


CONCURRENT SESSION 3.2 - psychosocial care


1. National assessment of the Supportive Care Needs of Indigenous Cancer Patients: preliminary results of a
cross-sectional study
Christina Bernardes, QIMR Berghofer Medical Research Institute (Australia)

2. Supportive care needs among newly diagnosed Aboriginal and Torres Strait Islander cancer patients: the silver
lining for patients with comorbidity
Abbey Diaz, Menzies School of Health Research (Australia)

3. Quality of Life among Indigenous Australians with Cancer
Gail Garvey, Menzies School of Health Research (Australia)

4. Complexities of head and neck cancer: Health-related quality of life concerns reported by Aboriginal patients in
South and Central Australia
Jasmine Micklem, Wardliparingga Aboriginal Health Research Unit, South Australian Health and Medical
Research Institute (Australia)

5. Unmet supportive care needs of Australian Aboriginal and Torres Strait Islanders with cancer: a prospective,
longitudinal study
Patricia Valery, QIMR Berghofer Medical Research Institute (Australia)

6. Risk for psychological distress among cancer patients with a familial history of Indian Residential School
Maike van Niekerk, Dalhousie University (Canada)


concurrent session 3.3 - resource & program development 2


1. Findings: the Walking Forward American Indian Survivorship Physical Activity Pilot Program
Linda Burhansstipanov, Native American Cancer Research Corporation (USA)

2. Dialogue and storywork in support of First Nations, Inuit and MÈtis cancer patients throughout Oncology and
Primary Care transition experiences.

Andre Corriveau, Department of Health & Social Services, Government of the Northwest Territories (Canada)

3. Not enough time or was the time not right? Exploring the use of bowel cancer screening educational resources
Margaret Haigh, Western Australian Centre for Rural Health (Australia)

4. Does Digital Storytelling Improve Cancer Prevention and Decrease Medical Mistrust in American Indians?
Emily Haozous, University of New Mexico College of Nursing (USA)

5. Listen You Women Your Breast Are Precious
Dawn Ross, Batchelor Institute (Australia)

6. Localised Oncology “Closing the Gap” Videos: connecting Indigenous Cancer Patients and Staff in a Regional
Australian Cancer Centre.

Rose Wadwell, HNELHD, (Australia)


plenary four - diagnosis and care


1. Diagnosis & Patterns of Care
Judith Salmon Kaur, Mayo Clinic (USA)

2. Comorbidities
Diana Sarfati, University of Otago (New Zealand)

3. Health disparities in rural and remote areas
Nadine Caron, UBC Faculty of Medicine’s School of Population and Public Health (Canada) MATERIALS NOT AVAILABLE FOR DOWNLOAD

concurrent session 4.1 - treatment 1


1. Racial and Regional Referral Patterns to a CoC Accredited Facility for Cancer Management
Janis Campbell, University of Oklahoma Health Sciences Center

2. A Healing Culture: Aboriginal Cancer Warriors Respond to Cancer
Linda Day, Aboriginal Mother Centre Society (Canada)

3. Characteristics and care pathways of Indigenous Australians at Peter MacCallum Cancer Centre: A
retrospective audit
Allison Drosdowsky, Peter MacCallum Cancer Centre (Australia)

4. Cancer Inequalities for Mãori: the journey and clinical decision-making
Louise Signal, University of Otago, Wellington (New Zealand)

5. Indigenous inequities in the stomach cancer treatment pathway in New Zealand
Virginia Signal, University of Otago, Wellington (New Zealand)

6. Who goes where?: Treating Indigenous patients in cancer services in Australia
Sandra Thompson, WA Centre for Rural Health, University of Western Australia (Australia)

concurrent session 4.2 - leadership & partnership 2


1. The knowledge is in the room: Government-community partnerships for cancer prevention and support in the
Northwest Territories

Andre Corriveau, Department of Health & Social Services, Government of the Northwest Territories (Canada)

2. The NETwork! Roadmap for Genomic Research and Mãori Engagement in New Zealand
Kimiora Henare, Auckland Cancer Society Research Centre (New Zeland)

3. Rethinking cancer, raising hope: Understanding Aboriginal cancer care in Victoria.
Alison Hocking, Peter MacCallum Cancer Centre (Australia)

4. First Nations and Alberta Health Services Cancer Care Initiative and Partnership
Angeline Letendre, Alberta Health Services (Canada)

5. Cancer Society Wellington - Policy, Governance and Action
Christine Pihema, Cancer Society Wellington Division (New Zealand)

6. Bridging the divide: Cross-cultural collaboration in the development and delivery of cancer services with and
for Aboriginal people

Rick Shipp, SNSWLMD (Australia)

concurrent session 4.3 - education & training


1. Ten years, 177 Health Workers and 72 Communities - Kicking goals for cancer education
Amber Copland, Cancer Council Queensland (Australia)

2. Development and evaluation of a cancer education course for Aboriginal Health Professionals
Louise De Busch, Cancer Council Western Australia (Australia)

3. More than knowing about cancer - cancer control education for Aboriginal Health Workers
Anne-Marie Dewar, Menzies School of Health Research (Australia)

4. To accredit or not accredit cancer education training? Lessons learnt from Aboriginal cancer education
initiatives in South Australia

Carmel McNamara, Cancer Council South Australia (Australia)

5. Building blocks and stepping stones: reflections from the Yarning about cancer project in South Australia
Carmel McNamara, Cancer Council South Australia (Australia)

6. The Development of a National Indigenous Cancer Network - lessons learned
Matthew Plant, Menzies School of Health Research (Australia)